Synthetic Data in Healthcare and Drug Development: Definitions, Regulatory Frameworks, Issues.

Journal: CPT: pharmacometrics & systems pharmacology
Published Date:

Abstract

With the recent and evolving regulatory frameworks regarding the usage of Artificial Intelligence (AI) in both drug and medical device development, the differentiation between data derived from observed ('true' or 'real') sources and artificial data obtained using process-driven and/or (data-driven) algorithmic processes is emerging as a critical consideration in clinical research and regulatory discourse. We conducted a critical literature review that revealed evidence of the current ambivalent usage of the term "synthetic" (along with derivative terms) to refer to "true/observed" data in the context of clinical trials and AI-generated data (or "artificial" data). This paper, stemming from a critical evaluation of different perspectives captured from the scientific literature and recent regulatory endeavors, seeks to elucidate this distinction, exploring their respective utilities, regulatory stances, and upcoming needs, as well as the potential for both data types in advancing medical science and therapeutic development.

Authors

  • Giuseppe Pasculli
    Nephrology, Dialysis, and Transplantation Unit, Department of Emergency and Organ Transplantation, University of Bari Aldo Moro, Bari, Italy.
  • Marco Virgolin
    InSilicoTrials Technologies B.V., s-Hertogenbosch, the Netherlands.
  • Puja Myles
    Clinical Practice Research Datalink, Medicines and Healthcare products Regulatory Agency, London, UK.
  • Anna Vidovszky
    Unlearn.AI, San Francisco, California, USA.
  • Charles Fisher
    Unlearn.AI, San Francisco, California, USA.
  • Elisabetta Biasin
    Centre for IT & IP Law (CiTiP), KU Leuven, Leuven, Belgium.
  • Miranda Mourby
    Centre for Health, Law and Emerging Technologies (HeLEX), Faculty of Law, University of Oxford, Oxford, UK.
  • Francesco Pappalardo
    Department of Drug Sciences, University of Catania , Catania, Italy.
  • Saverio D'Amico
    IRCCS Istituto Clinico Humanitas, Milan, Italy.
  • Mario Torchia
    InSilicoTrials Technologies S.p.A., Trieste, Italy.
  • Alexander Chebykin
    InSilicoTrials Technologies B.V., s-Hertogenbosch, the Netherlands.
  • Vincenzo Carbone
    InSilicoTrials Technologies S.p.A., Trieste, Italy.
  • Luca Emili
    InSilicoTrials Technologies S.p.A., Trieste, Italy.
  • Daniel Roeshammar
    InSilicoTrials Technologies S.p.A., Trieste, Italy.