Towards the Common Data Model for an Intensive Medicine Data Space in Europe.

Journal: Studies in health technology and informatics
Published Date: May 15, 2025

Abstract

This work aims to identify the Key Research Areas for building and deploying the semantic interoperability framework for the Intensive Medicine Data Space in Europe. A set of European experts defined four research areas and associated challenges: i) to characterize the value of Common Data Models, vocabularies and standardized data elements for creating the foundation for the standardization of Intensive Care Unit (ICU) data sets, ii) to derive the Common Data Model ensuring seamless data interoperability supporting the querying and access to high-quality, multi-modal data located on federated nodes according to the FAIR principles, iii) to define and support the data standardization process enabling efficient secondary use of ICU data set during the execution of key decision support use cases through the Intensive Medicine Data Space in Europe and beyond, and iv) to define requirements for anonymization and pseudonymization for the good balance between data protection and innovation.

Authors

  • Carlos Luis Parra-Calderón
    European Federation for Medical Informatics, Switzerland.
  • Celia Alvarez-Romero
    Institute of Biomedicine of Seville (IBIS), Virgen del Rocío University Hospital, University of Seville, Seville, Spain.
  • María González-López
    Computational Health Informatics Group, Institute of Biomedicine of Seville, IBIS/ Virgen del Rocío University Hospital/CSIC/University of Seville, Spain.
  • Silvia Rodríguez-Mejías
    Computational Health Informatics Group, Institute of Biomedicine of Seville, IBIS/ Virgen del Rocío University Hospital/CSIC/University of Seville, Spain.
  • Kirsten Colpaert
    Department of Intensive Care Medicine, Ghent University Hospital, De Pintelaan 185, 2 K12 IC, B-9000 Ghent, Belgium.
  • Felix Balzer
    Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Department of Anesthesiology and Operative Intensive Care Medicine (CCM, CVK), Charitéplatz 1, 10117, Berlin, Germany.
  • Boris Delange
    CHU Rennes, INSERM, LTSI-UMR 1099, Univ Rennes, 35000 Rennes, France.
  • Marc Cuggia
    Univ Rennes, CHU Rennes, Inserm, LTSI - UMR 1099, F-35000 Rennes, France.
  • Denis Delamarre
    CHU Rennes, Centre de Données Cliniques, Rennes, F-35000, France.
  • Christel Daniel
    Assistance Publique Hôpitaux de Paris, Paris, France.
  • Maxim Moinat
    Erasmus MC University Medical Center, Department of Adult Intensive Care, Rotterdam, The Netherlands.
  • Jan van den Brand
    Erasmus MC University Medical Center, Department of Adult Intensive Care, Rotterdam, The Netherlands.
  • Michel E van Genderen
    Erasmus MC Datahub, Erasmus University Medical Centre, Rotterdam, the Netherlands; Department of Adult Intensive Care, Erasmus University Medical Centre, Rotterdam, the Netherlands.
  • Lucas Fleuren
    Erasmus MC University Medical Center, Department of Adult Intensive Care, Rotterdam, The Netherlands.
  • Christian Jung
    Medical Faculty, Department of Cardiology, Pulmonology and Vascular Medicine, Heinrich-Heine-University Dusseldorf, Dusseldorf, German and CARID (Cardiovascular Research Institute Düsseldorf), Dusseldorf, Germany.

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