A Research Roadmap: Connected Health as an Enabler of Cancer Patient Support.

Journal: Journal of medical Internet research
Published Date:

Abstract

The evidence that quality of life is a positive variable for the survival of cancer patients has prompted the interest of the health and pharmaceutical industry in considering that variable as a final clinical outcome. Sustained improvements in cancer care in recent years have resulted in increased numbers of people living with and beyond cancer, with increased attention being placed on improving quality of life for those individuals. Connected Health provides the foundations for the transformation of cancer care into a patient-centric model, focused on providing fully connected, personalized support and therapy for the unique needs of each patient. Connected Health creates an opportunity to overcome barriers to health care support among patients diagnosed with chronic conditions. This paper provides an overview of important areas for the foundations of the creation of a new Connected Health paradigm in cancer care. Here we discuss the capabilities of mobile and wearable technologies; we also discuss pervasive and persuasive strategies and device systems to provide multidisciplinary and inclusive approaches for cancer patients for mental well-being, physical activity promotion, and rehabilitation. Several examples already show that there is enthusiasm in strengthening the possibilities offered by Connected Health in persuasive and pervasive technology in cancer care. Developments harnessing the Internet of Things, personalization, patient-centered design, and artificial intelligence help to monitor and assess the health status of cancer patients. Furthermore, this paper analyses the data infrastructure ecosystem for Connected Health and its semantic interoperability with the Connected Health economy ecosystem and its associated barriers. Interoperability is essential when developing Connected Health solutions that integrate with health systems and electronic health records. Given the exponential business growth of the Connected Health economy, there is an urgent need to develop mHealth (mobile health) exponentially, making it both an attractive and challenging market. In conclusion, there is a need for user-centered and multidisciplinary standards of practice to the design, development, evaluation, and implementation of Connected Health interventions in cancer care to ensure their acceptability, practicality, feasibility, effectiveness, affordability, safety, and equity.

Authors

  • Gabriel Ruiz Signorelli
    Oncoavanze, Seville, Spain.
  • Fedor Lehocki
    Slovak University of Technology in Bratislava, Bratislava, Slovakia.
  • Matilde Mora Fernández
    Sport & Society Research Group, Faculty of Educational Sciences, University of Seville, Seville, Spain.
  • Gillian O'Neill
    Insight Centre for Data Analytics, O'Brien Centre for Science, University College Dublin, Belfield Campus, Dublin, Ireland.
  • Dominic O'Connor
    Insight Centre for Data Analytics, O'Brien Centre for Science, University College Dublin, Belfield Campus, Dublin, Ireland.
  • Louise Brennan
    Insight Centre for Data Analytics, O'Brien Centre for Science, University College Dublin, Belfield Campus, Dublin, Ireland.
  • Francisco Monteiro-Guerra
    Insight Centre for Data Analytics, O'Brien Centre for Science, University College Dublin, Belfield Campus, Dublin, Ireland.
  • Alejandro Rivero-Rodriguez
    Salumedia Tecnologías, Seville, Spain.
  • Santiago Hors-Fraile
    Salumedia Tecnologías, Seville, Spain.
  • Juan Munoz-Penas
    University of Southern Denmark, Kolding, Denmark.
  • Mercè Bonjorn Dalmau
    University of Southern Denmark, Kolding, Denmark.
  • Jorge Mota
    Research Centre in Physical Activity, Health and Leisure, Faculty of Sport, University of Porto, Porto, Portugal.
  • Ricardo B Oliveira
    Laboratory of Active Living, Institute of Physical Education and Sports, University of Rio de Janeiro State, Rio de Janeiro, Brazil.
  • Bela Mrinakova
    First Department of Oncology, Comenius University, Bratislava, Slovakia.
  • Silvia Putekova
    Faculty of Health Care and Social Work, University of Trnava, Trnava, Slovakia.
  • Naiara Muro
    Laboratoire d'informatique médicale et d'ingénierie des connaissances en e-Santé, Sorbonne Universités, Paris, France.
  • Francisco Zambrana
    Department of Oncology, Infanta Sofia University Hospital, Madrid, Spain.
  • Juan M García-Gómez
    Biomedical Data Science Lab. Instituto de Aplicaciones de las Tecnologías de la Información y de las Comunicaciones Avanzadas (ITACA), Universitat Politécnica de Valéncia, Camino de Vera s/n, Valencia 46022, Spain. Electronic address: juanmig@ibime.upv.es.