Data Sharing of Imaging in an Evolving Health Care World: Report of the ACR Data Sharing Workgroup, Part 1: Data Ethics of Privacy, Consent, and Anonymization.

Journal: Journal of the American College of Radiology : JACR
Published Date: Oct 2, 2021

Abstract

Radiology is at the forefront of the artificial intelligence transformation of health care across multiple areas, from patient selection to study acquisition to image interpretation. Needing large data sets to develop and train these algorithms, developers enter contractual data sharing agreements involving data derived from health records, usually with postacquisition curation and annotation. In 2019 the ACR convened a Data Sharing Workgroup to develop philosophies around best practices in the sharing of health information. The workgroup identified five broad domains of activity important to collaboration using patient data: privacy, informed consent, standardization of data elements, vendor contracts, and data valuation. This is Part 1 of a Report on the workgroup's efforts in exploring these issues.

Authors

  • Juan Carlos Batlle
    Chief of Radiology, Doctors Hospital, Coral Gables, Florida; and Associate Professor, Chief of Thoracic Imaging, Baptist Health South Florida, Coral Gables Florida. Electronic address: Juan.batlle@alumni.duke.edu.
  • Keith Dreyer
    Department of Radiology, Massachusetts General Hospital, Boston, Massachusetts.
  • Bibb Allen
    Department of Radiology, Grandview Medical Center, Birmingham, Alabama. Electronic address: bibb@mac.com.
  • Tessa Cook
    Department of Radiology, Hospital of the University of Pennsylvania, 3400 Spruce St, Philadelphia, PA 19104 (J.D.R., L.X., A.K., J.M.E., T.C., I.M.N., S.M., J.C.G.); Department of Radiology and Biomedical Imaging, University of California, San Francisco, San Francisco, Calif (J.D.R., A.M.R.); Penn Image Computing and Science Laboratory, University of Pennsylvania, Philadelphia, Pa (X.L., J.W.); University of Pennsylvania Perelman School of Medicine, Philadelphia, Pa (M.T.D.); Mecklenburg Radiology Associates, Charlotte, NC (E.J.B.); Department of Radiology, University of Texas, Austin, Tex (R.N.B.); and Division of Nuclear Medicine and Clinical Molecular Imaging, Department of Radiology, University of Pennsylvania, Philadelphia, Pa (I.M.N.).
  • Christopher J Roth
    Chair, SIIM Program Committee; Chair, HIMSS-SIIM; Enterprise Imaging Community; Chair, ACR Informatics Commission; Chair, IHE Radiology (RSNA); RSNA Annual Meeting Program Planning Committee, Chair, Informatics Subcommittee; RSNA Informatics Committee; and Duke University School of Medicine, Durham, North Carolina.
  • Andrea Borondy Kitts
    Lahey Hospital & Medical Center, Burlington, Massachusetts.
  • Raym Geis
    Department of Radiology, National Jewish Health, Denver, Colorado, USA.
  • Carol C Wu
    University of Texas MD Anderson Cancer Center, Houston, Texas.
  • Matt P Lungren
    Co-Director, Stanford Center for Artificial Intelligence in Medicine; and Imaging Associate Professor, Stanford University School of Medicine, Palo Alto, California.
  • Jay Patti
    Novant Health Winston-Salem, North Carolina; and Chief Radiology Informatics Officer, Mecklenburg Radiology Associates, Charlotte, North Carolina.
  • Adam Prater
    Department of Radiology, Medical College of Georgia at Augusta University, 1120 15th St, Augusta, GA 30912 (Y.T.); and Department of Radiology, Emory University, Atlanta, Ga (B.V., E.K., A.P., J.G., N.S., H.T.).
  • Daniel Rubin
    Department of Radiology, Stanford University, Stanford, CA, USA.
  • Safwan Halabi
    Department of Radiology, Stanford University, Palo Alto, California.
  • Mike Tilkin
    Chief Information Officer and EVP for Technology (ACR), Reston, Virginia.
  • Tom Hoffman
    Vice-President, Legal, American College of Radiology, Reston, Virginia.
  • Laura Coombs
    ACR Data Science Institute, Reston, Virginia.
  • Christoph Wald
    Chairman, Department of Radiology at Lahey Hospital & Medical Center, Professor of Radiology, Tufts University Medical School; Chair of the ACR Informatics Commission.

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