Social Media Insights Into Disease Burden in Patients and Caregivers of Myelodysplastic Syndrome: Subcohort Analysis of High-Risk Patients.

Journal: Journal of medical Internet research
Published Date: Aug 22, 2025

Abstract

BACKGROUND: Social media platforms offer valuable insights into patients' experience, revealing organic conversations that reflect their immediate concerns and needs. Through active listening to lived experiences, we can identify unmet needs and discover the real-world challenges that patients and caregivers face.

Authors

  • Rohit Marwah
    Definitive Healthcare, 492 Old Connecticut Path Suite 401, Framingham, MA, 01701, United States, 1 5087204224.
  • Subrat Mishra
    Definitive Healthcare, 492 Old Connecticut Path Suite 401, Framingham, MA, 01701, United States, 1 5087204224.
  • Benjamin Gross
    Memorial Sloan Kettering Cancer Center, New York, NY, USA.
  • Sandra Couturiaux
    Definitive Healthcare, 492 Old Connecticut Path Suite 401, Framingham, MA, 01701, United States, 1 5087204224.
  • Rico Calara
    Gilead Sciences Inc, Foster City, CA, United States.
  • Eduardo Jose Sabate Estrella
    Gilead Sciences Inc, Foster City, CA, United States.
  • Cosmina Hogea
    Gilead Sciences Inc, Foster City, CA, United States.

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