Optimising the care for older persons with complex chronic conditions in home care and nursing homes: design and protocol of I-CARE4OLD, an observational study using real-world data.

Journal: BMJ open
PMID:

Abstract

INTRODUCTION: In ageing societies, the number of older adults with complex chronic conditions (CCCs) is rapidly increasing. Care for older persons with CCCs is challenging, due to interactions between multiple conditions and their treatments. In home care and nursing homes, where most older persons with CCCs receive care, professionals often lack appropriate decision support suitable and sufficient to address the medical and functional complexity of persons with CCCs. This EU-funded project aims to develop decision support systems using high-quality, internationally standardised, routine care data to support better prognostication of health trajectories and treatment impact among older persons with CCCs.

Authors

  • Emiel O Hoogendijk
    Amsterdam UMC, location Vrije Universiteit Amsterdam, Department of General Practice, De Boelelaan 1117, Amsterdam, The Netherlands e.hoogendijk@amsterdamumc.nl.
  • Graziano Onder
    Department of Cardiovascular, Endocrine-metabolic Diseases and Aging, Instituto Superiore di Sanità, Rome, Italy.
  • Louk Smalbil
    Department of Computer Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
  • Davide L Vetrano
    Aging Research Center, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet and Stockholm University, Stockholm, Sweden.
  • John P Hirdes
    School of Public Health and Health Systems, University of Waterloo, 200 University Avenue West, Waterloo, ON, N2L 3G1, Canada.
  • Elizabeth P Howard
    Connell School of Nursing, Boston College, Chestnut Hill, Boston, MA, USA.
  • John N Morris
    The Hinda and Arthur Marcus Institute for Aging Research, Hebrew SeniorLife, Boston, MA, USA.
  • Daniela Fialová
    Department of Social and Clinical Pharmacy, Faculty of Pharmacy, Charles University, Hradec Králové, Czech Republic.
  • Katarzyna Szczerbińska
    Laboratory for Research on Aging Society, Chair of Epidemiology and Preventive Medicine, Medical Faculty, Jagiellonian University Medical College, Kraków, Poland.
  • Eline Cm Kooijmans
    Amsterdam UMC, location Vrije Universiteit Amsterdam, Department of General Practice, De Boelelaan 1117, Amsterdam, The Netherlands.
  • Mark Hoogendoorn
    Vrije Universiteit Amsterdam, Department of Computer Science, De Boelelaan 1081, Amsterdam 1081 HV, The Netherlands.
  • Anja Declercq
    LUCAS, Center for Care Research and Consultancy, KU Leuven, Leuven, Belgium.
  • Johanna De Almeida Mello
    LUCAS, Center for Care Research and Consultancy, KU Leuven, Leuven, Belgium.
  • Riikka-Leena Leskelä
    Department of Public Health, University of Helsinki, Helsinki, Finland; Nordic Healthcare Group, Helsinki, Finland.
  • Jokke Häsä
    Data and Analytics Unit, Finnish Institute for Health and Welfare, Helsinki, Finland.
  • Johanna Edgren
    Department of Public Health and Welfare, Finnish Institute for Health and Welfare, Helsinki, Finland.
  • Georg Ruppe
    European Geriatric Medicine Society (EUGMS), Vienna, Austria.
  • Rosa Liperoti
    Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy.
  • Karlijn J Joling
    Amsterdam Public Health research institute, Ageing and later life research program, Amsterdam, The Netherlands.
  • Hein Pj van Hout
    Amsterdam UMC, location Vrije Universiteit Amsterdam, Department of General Practice, De Boelelaan 1117, Amsterdam, The Netherlands.