What do you think caused your ALS? An analysis of the CDC national amyotrophic lateral sclerosis patient registry qualitative risk factor data using artificial intelligence and qualitative methodology.

Journal: Amyotrophic lateral sclerosis & frontotemporal degeneration
PMID: 38717430

Abstract

OBJECTIVE: Amyotrophic lateral sclerosis (ALS) is an incurable, progressive neurodegenerative disease with a significant health burden and poorly understood etiology. This analysis assessed the narrative responses from 3,061 participants in the Centers for Disease Control and Prevention's National ALS Registry who answered the question, "What do you think caused your ALS?"

Authors

  • Danielle Boyce
    Center for Quantitative Methods and Data Science, Institute for Clinical Research and Health Policy Studies, Tufts University School of Medicine, Boston, MA, USA.
  • Jaime Raymond
    Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry, Office of Innovation and Analytics, National ALS Registry (CDC/ATSDR), Atlanta, GA, USA, and.
  • Theodore C Larson
    Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry, Office of Innovation and Analytics, National ALS Registry (CDC/ATSDR), Atlanta, GA, USA, and.
  • Eddie Kirkland
    ICF, Inc., Atlanta, GA, USA.
  • D Kevin Horton
    Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry, Office of Innovation and Analytics, National ALS Registry (CDC/ATSDR), Atlanta, GA, USA, and.
  • Paul Mehta
    Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry, Office of Innovation and Analytics, National ALS Registry (CDC/ATSDR), Atlanta, GA, USA, and.

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