AIMC Topic: Registries

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Clinical characteristics and CKD care delivery in African American and American Indian or Alaska Native patients: A real-world cohort study.

BMC nephrology
BACKGROUND: Racially minoritized populations in the United States (US), notably African American (AA) and American Indian/Alaska Native (AI/AN), experience disproportionately higher rates of chronic kidney disease (CKD), diabetes, and hypertension co...

Natural Language Processing framework for identifying abdominal aortic aneurysm repairs using unstructured electronic health records.

Scientific reports
Patient identification for national registries often relies upon clinician recognition of cases or retrospective searches using potentially inaccurate clinical codes, leading to incomplete data capture and inefficiencies. Natural Language Processing ...

Performance of Natural Language Processing versus International Classification of Diseases Codes in Building Registries for Patients With Fall Injury: Retrospective Analysis.

JMIR medical informatics
BACKGROUND: Standardized registries, such as the International Classification of Diseases (ICD) codes, are commonly built using administrative codes assigned to patient encounters. However, patients with fall injury are often coded using subsequent i...

Development and evaluation of machine learning training strategies for neonatal mortality prediction using multicountry data.

Scientific reports
Neonatal mortality poses a critical challenge in global health, particularly in low- and middle-income countries. Leveraging advancements in technology, such as machine learning (ML) algorithms, offers the potential to improve neonatal care by enabli...

External validation of a prediction model for disability and pain after lumbar disc herniation surgery: a prospective international registry-based cohort study.

Acta orthopaedica
BACKGROUND AND PURPOSE:  We aimed to externally validate machine learning models developed in Norway by evaluating their predictive outcome of disability and pain 12 months after lumbar disc herniation surgery in a Swedish and Danish cohort.

Machine learning-based prediction of short- and long-term mortality for shared decision-making in older hip fracture patients: the Dutch Hip Fracture Audit algorithms in 74,396 cases.

Acta orthopaedica
BACKGROUND AND PURPOSE:  Treatment-related shared decision-making (SDM) in older adults with hip fractures is complex due to the need to balance patient-specific factors such as life goals, frailty, and surgical risks. It includes considerations such...

Clinical, genetic, and sociodemographic predictors of symptom severity after internet-delivered cognitive behavioural therapy for depression and anxiety.

BMC psychiatry
BACKGROUND: Internet-delivered cognitive behavioural therapy (ICBT) is an effective and accessible treatment for mild to moderate depression and anxiety disorders. However, up to 50% of patients do not achieve sufficient symptom relief. Identifying p...

Menopausal hormone therapy and the female brain: Leveraging neuroimaging and prescription registry data from the UK Biobank cohort.

eLife
BACKGROUND: Menopausal hormone therapy (MHT) is generally thought to be neuroprotective, yet results have been inconsistent. Here, we present a comprehensive study of MHT use and brain characteristics in females from the UK Biobank.

Automated extraction of functional biomarkers of verbal and ambulatory ability from multi-institutional clinical notes using large language models.

Journal of neurodevelopmental disorders
BACKGROUND: Functional biomarkers in neurodevelopmental disorders, such as verbal and ambulatory abilities, are essential for clinical care and research activities. Treatment planning, intervention monitoring, and identifying comorbid conditions in i...