Beyond standard data collection - the promise and potential of BRAIN (Brain tumour Registry Australia INnovation and translation registry).

Journal: BMC cancer
PMID: 35655179

Abstract

BACKGROUND: Real-world data (RWD) is increasingly being embraced as an invaluable source of information to address clinical and policy-relevant questions that are unlikely to ever be answered by clinical trials. However, the largely unrealised potential of RWD is the value to be gained by supporting prospective studies and translational research. Here we describe the design and implementation of an Australian brain cancer registry, BRAIN, which is pursuing these opportunities.

Authors

  • Lucy Gately
    Personalised Oncology Division, The Walter and Eliza Hall Institute of Medial Research, 1G Royal Parade, Parkville, Melbourne, VIC, 3052, Australia. lucyjgately@hotmail.com.
  • Katharine Drummond
    Department of Neurosurgery, Royal Melbourne Hospital, Parkville, VIC, Australia.
  • Mark Rosenthal
    Medical Oncology, Royal Melbourne Hospital, Melbourne, VIC, Australia.
  • Rosemary Harrup
    Cancer & Blood Services, Royal Hobart Hospital, Hobart, TAS, Australia.
  • Anthony Dowling
    Department of Medical Oncology, St Vincent's Hospital Melbourne, Melbourne, VIC, Australia.
  • Andrew Gogos
    Department of Neurosurgery, St Vincent's Hospital Melbourne, Melbourne, VIC, Australia.
  • Zarnie Lwin
    Department of Medical Oncology, Cancer Care Services, Royal Brisbane and Women's Hospital, and The University of Queensland, Brisbane, QLD, Australia.
  • Ian Collins
    Department of Medicine, Deakin University, Geelong, VIC, Australia.
  • David Campbell
    Department of Medical Oncology, University Hospital Geelong, Barwon Health, Geelong, VIC, Australia.
  • Elizabeth Ahern
    Department of Oncology, Monash Health, Melbourne, VIC, Australia.
  • Claire Phillips
    Department of Radiation Oncology, Peter MacCallum Cancer Centre, Melbourne, VIC, Australia.
  • Hui K Gan
    Department of Medical Oncology, Austin Hospital, Heidelberg, VIC, Australia.
  • Iwan Bennett
    Department of Neurosurgery, The Alfred, Melbourne, VIC, Australia.
  • Oliver M Sieber
    Personalised Oncology Division, The Walter and Eliza Hall Institute of Medial Research, 1G Royal Parade, Parkville, Melbourne, VIC, 3052, Australia.
  • Peter Gibbs
    Department of Radiology, Memorial Sloan Kettering Cancer Center, New York, NY, USA; Department of Medical Physics, Memorial Sloan Kettering Cancer Center, New York, NY, USA.

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