Detecting Conversation Topics in Recruitment Calls of African American Participants to the All of Us Research Program Using Machine Learning: Model Development and Validation Study.

Journal: JMIR formative research
Published Date:

Abstract

BACKGROUND: Advancements in science and technology can exacerbate health disparities, particularly when there is a lack of diversity in clinical research, which limits the benefits of innovations for underrepresented communities. Programs like the All of Us Research Program (AoURP) are actively working to address this issue by ensuring that underrepresented populations are represented in biomedical research, promoting equitable participation, and advancing health outcomes for all. African American communities have been particularly underrepresented in clinical research, often due to historical instances of research misconduct, such as the Tuskegee Syphilis Study, which have deeply impacted trust and willingness to participate in research studies. With the US population becoming increasingly diverse, it is crucial that clinical research studies reflect this diversity to improve health outcomes. However, limited data and small sample sizes in qualitative studies on the inclusion of underrepresented groups hinder progress in this area.

Authors

  • Priscilla Pemu
    Department of Medicine, Morehouse School of Medicine, Atlanta, GA, United States.
  • Michael Prude
    Clinical Research Center, Morehouse School of Medicine, Atlanta, GA, United States.
  • Atuarra McCaslin
    Clinical Research Center, Morehouse School of Medicine, Atlanta, GA, United States.
  • Elizabeth Ojemakinde
    Clinical Research Center, Morehouse School of Medicine, Atlanta, GA, United States.
  • Christopher Awad
    Wexner Medical Center, The Ohio State University, Colombus, OH, United States.
  • Kelechi Igwe
    Clinical Research Center, Morehouse School of Medicine, Atlanta, GA, United States.
  • Anny Rodriguez
    Department of Public Health Education, Morehouse School of Medicine, Atlanta, GA, United States.
  • Jasmine Foriest
    Human-Centered Computing, School of Interactive Computing, Georgia Institute of Technology, Atlanta, GA, United States.
  • Muhammed Idris
    Department of Medicine, Morehouse School of Medicine, Atlanta, GA, United States.