AIMC Topic: Caregivers

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Progress, challenges and global approaches to rare diseases.

Acta paediatrica (Oslo, Norway : 1992)
Rare diseases occur globally at every stage of life. Patients, families and caregivers have many unmet medical and social needs leading to extraordinary psychosocial and economic burdens. Efforts to improve diagnostic capabilities and to develop ther...

Prediction of caregiver quality of life in amyotrophic lateral sclerosis using explainable machine learning.

Scientific reports
Amyotrophic Lateral Sclerosis (ALS) is a rare neurodegenerative, fatal and currently incurable disease. People with ALS need support from informal caregivers due to the motor and cognitive decline caused by the disease. This study aims to identify ca...

"Looking Under the Hood" of Anchor-Based Assessment of Clinically Important Change: A Machine Learning Approach.

Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research
OBJECTIVES: The Global Assessment of Change (GAC) item has facilitated the interpretation of change in patient-reported outcomes, providing an anchor for computing minimally important differences. Construct validity has been documented via disease-sp...

Acceptability of Social Robots and Adaptation of Hybrid-Face Robot for Dementia Care in India: A Qualitative Study.

The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
OBJECTIVES: This study aims to understand the acceptability of social robots and the adaptation of the Hybrid-Face Robot for dementia care in India.

Home-care robots - Attitudes and perceptions among older people, carers and care professionals in Ireland: A questionnaire study.

Health & social care in the community
Many countries face major challenges to ensure that their health and social care systems are ready for the growing numbers of older people (OP). As a way of realising ageing in place, assistive technologies such as home-care robots are expected to pl...

Humanoid socially assistive robots in dementia care: a qualitative study about expectations of caregivers and dementia trainers.

Aging & mental health
OBJECTIVE: To examine the expectations of informal caregivers, nurses, and dementia trainers regarding the support of (physical and psychosocial) human needs by humanoid social assistive robots (SARs) in dementia care.

Artificial intelligence for good health: a scoping review of the ethics literature.

BMC medical ethics
BACKGROUND: Artificial intelligence (AI) has been described as the "fourth industrial revolution" with transformative and global implications, including in healthcare, public health, and global health. AI approaches hold promise for improving health ...

The Perceptions of People with Dementia and Key Stakeholders Regarding the Use and Impact of the Social Robot MARIO.

International journal of environmental research and public health
People with dementia often experience loneliness and social isolation. This can result in increased cognitive decline which, in turn, has a negative impact on quality of life. This paper explores the use of the social robot, MARIO, with older people ...

Formal caregivers' perceptions and experiences of using pet robots for persons living with dementia in long-term care: A meta-ethnography.

Journal of advanced nursing
AIM: To explore the formal caregivers' perceptions and experiences of using pet robots for persons living with dementia residing in long-term care settings and the factors influencing their perceptions by evaluating, integrating, and synthesizing fin...