AIMC Topic: Patient Reported Outcome Measures

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Iloprost therapy achieves good clinical and radiological short and mid-term outcomes in patients with idiopathic aseptic osteonecrosis of the knee joint also in ARCO level II.

Archives of orthopaedic and trauma surgery
AIMS: The aim of this retrospective study was the evaluation of the patient-reported and radiological outcome of intravenous Iloprost therapy in the treatment of spontaneous osteonecrosis of the knee (SONK).

Artificial intelligence and the future of patient-centered outcomes.

Journal of patient-reported outcomes
BACKGROUND: Terheyden et al. recently described a compelling vision for large language model-enabled patient-reported outcome measures (LLM-PROMs).

Ten years on: how far have we come in patient engagement in diagnosis?

Diagnosis (Berlin, Germany)
The 2015 National Academy of Sciences, Engineering and Medicine report, Improving Diagnosis in Medicine, is known for its inclusive approach to patients. This paper explores the evolution of research in patient engagement in diagnosis over the past d...

Single-centre, prospective cohort to predict optimal individualised treatment response in multiple sclerosis (POINT-MS): a cohort profile.

BMJ open
PURPOSE: Multiple sclerosis (MS) is a chronic neurological condition that affects approximately 150 000 people in the UK and presents a significant healthcare burden, including the high costs of disease-modifying treatments (DMTs). DMTs have substant...

INDIGO randomised controlled digital clinical trial: INvestigating DIgital outcomes and quality of life in cancer survivors - a study protocol.

BMJ open
INTRODUCTION: There are estimated to be 3.4 million patients in the UK living after a diagnosis of cancer. We know very little about their quality of life or healthcare usage. Patient-reported outcome measures (PROMs) are tools which help to translat...

Cancer care coordination determinants of depression in head and neck cancer survivors.

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
PURPOSE: This study aims to explore the role of patient-reported cancer care coordination in explaining depression among head and neck (HNC) cancer survivors.

A patient-centered approach to developing and validating a natural language processing model for extracting patient-reported symptoms.

Scientific reports
Patient-reported symptoms provide valuable insights into patient experiences and can enhance healthcare quality; however, effectively capturing them remains challenging. Although natural language processing (NLP) models have been developed to extract...

Bayesian mediation analysis using patient-reported outcomes from AI chatbots to infer causal pathways in clinical trials.

PloS one
The integration of artificial intelligence (AI) chatbots into clinical trials offers a transformative approach to collecting patient-reported outcomes (PROs). Despite the increasing use of AI chatbots for real-time, interactive data gathering, system...

Screening for endometriosis: A scoping review of screening measures that could support early diagnosis.

BMC women's health
BACKGROUND: Endometriosis is prevalent in approximately 6-10% of all women of reproductive age and is associated with pelvic pain, heavy menstrual bleeding, infertility, and pain during intercourse. Despite reporting symptoms, women wait around 11 ye...

Patient-centered research in radiology: A Canadian perspective.

Clinical imaging
This article examines the importance of patient-centered research in radiology with an emphasis on incorporating the patient perspective to improve patient-reported outcomes (PROs) and research relevance. The methods for effective patient engagement ...